Sunday. Last night I was amazed to see God sustain my energy through the day because I had NO sleep on Friday night. I laid by her bed and it was the first night after the surgery so it was a long hard one. Today, different story. I slept at home and got the best sleep of my life. Frank slept by her bed but since we had a room change, he was able to have cot put by her bed (not the uncomfortable arm chair turned bed) and he and Janae had a great sleep. She was very lethergic yesterday. Not moving an inch. She struggled silently with all the tubes in every limb and hole of her body. She really struggled with the nose tube but she is such a compliant child by nature that she didn't complain much. I could just tell from her eyes and her silent whimpers. The nurses adorned her with care and help. She had to blow bubbles (which she normally loves) but did not show any emotion for this time. She had to do it for her lungs. She was stoic and stiff all day. I think concerned about how to move with all the things attached. She is on a lot of pain medicine. It was a major surgery, she has a large incision. Her blood pressure has been concerningly high since the surgery. She has wanted water very badly but is not allowed it.
That was yesterday's update but today is a new story. I know there are only a few hours of the day so far but Frank said she woke up smiling and asking if she could sit up and blow bubbles. The doctor came in a short time ago and took her nose tube out just like that. She is thrilled to say the least. She actually got a popsicle but no her tummy hurts really badly. Now I understand why they said 5 days till she can eat or drink. I guess because her intestines were fooled around with so much during the surgery (to get to the tumor) now they have to heal just like a twisted ankle would. They can't do their normal job in digesting food until they heal.
Frank meet with a pathologist this morning and they said we will not get the lab results till Wed so we can really have no idea of what lies ahead in light of treatment until those come back. They said a normal treatment would last two years.
We shall see what lies ahead for the day but we are beyond thankful and beyond blessed with all the Lord has accompished concerning her.
4 comments:
Oh, dear Suzanne. Thank you for sharing your thoughts. I am trying to put myself in your shoes and it seems too overwhelming. WE LOVE you all so much and our heart is breaking for your family and for Janae. WE also love our God so much and know HE loves you and her. Praise God from whom all blessings flow. We are praying, all the time, for her, for the doctors, for you both, for the girls...for peace. If there is anything we can do, we will. WE want to serve. It seems as if prayer is our best tool of service right now. We are doing that on your behalf. God is good. We love you.
On our knees, begging for God's comfort, Jana and Dwight Polivka
What a wonderful God we serve. To allow all things in his children's lives, "good" as we call it and "bad". If is often through the "bad" we truly come to understand who God is. We are blessed to know your family as well as this Awesome God. We are all praying for you as well. It is comforting to know that God calls HIs children together at a time like this. We saw it with our friends, Dirk and Nancy Wriedt, when their daughter was diagnosed with Leukemia. This is a great testimony time for all of us. By the way the website the Wriedts used to maintain updates on their daughter Bekah was www.caringbridge.org. We love you all as well and will continue to lift you up. Patty
I know we haven't seen you guys in a long time, but know that we're praying for you, as are my parents.
Michael Bare (Jr.) and Family
Hi Suzanne and family - I wanted to let you know that my parents are praying for you guys as well. My dad is an elder at their church in St. Louis of about 2,500 - they are going to put you all on their prayer list. I figure the more people praying the better! I am so glad you got some rest Suzanne and will pray that that will continue as you need all the strength you can get (which I know God will provide) to get through the coming days. Here is a verse that has been of comfort to me during difficult times. 2 Corinthians 1:3-5 Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have recieved from God. For just as the sufferings of Christ flow over into our lives, so also through Christ our comfort overflows.
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