Wow. What a day. So much good news that I wonder if things are too good to be true. As I said in the first email this morning...Frank slept by her bedside last night and when I talked to him first thing in the morning, the news was that she woke up, smiled at him, and asked to play bubbles. (Something they need her to do for her lungs). Then, the doctor took out the nose tube! Great day! Then, she got to have a popsicle!! Really great day! There is a bad cough but that is par for the course. It was very concerning to me when I first got in the room today and heard the cough but by tonight it has been gone for hours. Her spirits were up and down today but at least she had spirits...yesterday and the day post surgery it unnervingly seemed she was just a body laying there. Amazing progress in a day, she walked twice. Yes, they coerced her to do it and she sobbed through her little journeys to the door and beyond (about 8 feet beyond the first time and longer the second) but she did it. They held her under her arms and she shuffled her feet and we went on a "sister parade" as our favorite nurse called it. Each sister led the way as we all brought the tubes and wires along with. What a sight! It was hard for her but we knew it was good for her.
We have heard nothing from the oncologist yet but it is because we were told that we would not have reports back from the lab till Wed. We will no nothing until then but we are told that most chemo/radiation regimens take about an average of two years. Right now that seems sooo long but I know God will give us the strength to face what is ahead. For today, only good news.
By bed time she actually cracked a smile for Mommy when no one was looking that was big enough that I could see a few teeth. That is coming a long way. Get this, when I said it was time to go to sleep, this lifeless little body that only moved and or talked when made, actually asked me if she could walk o bed!! (all of 3 steps) but she did. Up a stool even into the bed. It seems too good to be true. Then I talked with a friend from church and heard an interesting fact. Not only have friends and strangers been praying nationwide, but this friend said when he walked into church this morning, it was as though he could feel the sense in the air that Janae was on everyone's minds and in their prayers. This website even went up on the overhead. The love and care of our body of believers is overwhelming to a place beyond words. Doesn't scripture say "they will know you are Christians by your love for one another"!! Then, they were all focused on prayers for Janae throughout their flock study tonight. I think this is so interesting because it all of a sudden hit me why Frank and I have sensed the closeness of God so supernaturally over these past days. The prayers of the saints. WOW. Even tonight, another miracle while they were praying at flock... I got to share the way God has been healing Janae, blessing us, sustaining us, and going ahead of us with our favorite nurse. She said she could tell. She saw it from the start and then the girls faith impressed her so much when she had a long talk with them. God was glorified before her eyes and she hopes others who are going through the same thing can be encouraged as well. I reminded her that it is Christ who she is seeing in us. I told her it is Christ's peace that doesn't make sense in a time like this that we are sensing.
All I can really say now, besides that our hearts bursts with desire for Janae to heal quickly, is that we are soooooo humbled that God has allowed us to be a part of His great will to show Himself to all these people. I wish it was my body that was suffering so He could be putting Himself on display through our family but if Janae has to be the one then praise be to our God and Father that He does not waste her pain.
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2 comments:
Heard about your little girl's diagnosis from Beth F. I will be praying for Janae and your entire family. My niece recently completed successful treatment for leukemia (she was diagnosed two days after her second birthday). God certainly didn't waste even a small portion of her pain! So many have been touched through the story and spirit of her family, as I am sure even more will be from your story and spirit. May God hold you all close and be your comfort and sustenance. - Wendy Hill
Dear saints and precious family,
We are praying fr God's continued strength and favor as you endure this trial concerning Janae's health! We know that in Chad's departure, the Lord's nearness was so evident to us and all those around. You are right that He doesn't waste pain! He will use this very tradegy where Satan thinks he has a foothold and bring glory to Himself!! Greater is He who is in us than he who is in the world!! We are beseeching the Lord daily on your behalf that He would heal Janae, if it be His will, and envelope you in His care and love during the process of waiting. Know we love you!
Dawn Harcus for the Harcus family
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